Monday, June 17, 2013

The New Normal: A Pretty Rad New Routine Outside Of Hospital Prison

Happy Birthday to Spencer's Godmommy, Tessa!! Can't wait for your wedding! It's going to be boatloads of fun! Hope today was AMAZING!!!

Spencer got to come home a week ago Sunday just like we thought and hoped. i took Sully to the Strawberry Fest car show and by that evening, my boys were together again. And we slipped right back into our home life like Round 4 never happened. He's been amazing at home. Eating and drinking like a champ, no throwing up, full of energy. Pretty much no side effects at all.

He went to the clinic last Wednesday for a check-up and they repeatedly told me how great he looks. He's an inspiration, truly. Never let this whole mess get him down. Wish I could say the same. I've been feeling a lot of anxiety lately, like I just heard for the first time that my son has cancer. It's been tough to shake but I'm trying to stay positive. Only 2 rounds to go.

We've been able to have his extra blood work done close to home which saves us a trip downtown. But yesterday, Spence had a lot of bruising on his arms and legs which is an indicator that his platelets are low. So Todd bypassed the local blood draw and went right to Rainbow. His platelets were only 15 (150-500 is the norm) so they filled him up and he was good to go. He'll probably need blood tomorrow which takes about 3 hours. Trying to get a 22 month old to sit still for 3 hours on a short leash is a challenge and I get to go on this adventure. But whatever he needs, I'm there. 

We still have a few weeks at home which is exciting. I've gotten to spend time with friends and go to a bachelorette party, which was entertaining. I wish we had the options to recover at home for the final rounds but I don't think that's possible. I'm not going to bother getting my hopes up. I'll just thank my lucky stars that he's doing as well as he is. We ARE so lucky. It's still every patent's nightmare but we're surviving it and we'll just move on when it's done. He'll start pre-pre-school, we'll do swimming lessons, I'll start my nursing program and we'll just live.

And to end on a happy note, I think Sully is going to walk at 9 months. He's been crawling, standing, cruising...and getting a lot of bumps and bruises, including a nasty split lip. But that's what it's like to have baby boys, right? Hopefully Spencer will take a cue from Sully and get himself standing. I'm hopeful that progress is right around the corner!!

Life is (pretty) good. It would be better if I didn't have an Inorganic Chem exam today!!

1 comment:

  1. Thank you!! My Birthday was just what I needed. A page out of your book of relaxing!! :) Love you all!!